The San Bartolomé de Tirajana City Council supports the Canarian Umiaya Foundation to create a scientific dissemination portal

The San Bartolomé de Tirajana City Council has renewed its collaboration agreement with the Canarian Umiaya Foundation for Sudden Death Care, for the launch of a server with a database of all the genetic mutations detected in the Canary Islands and the activation of an online consultation through the foundation's website.

 

The mayor, Concepción Narváez, highlighted the constant commitment of the City Council to the work carried out by this Foundation, “with which we have collaborated since it was founded in 2008 and of which we are honorary partners. We are aware of the importance of their work, to which we will continue to contribute with institutional support, which will be effective this year and next.”

 

The collaboration on the part of the San Bartolomé de Tirajana City Council will serve to implement some of the actions with which the Foundation wants to continue improving the service it provides to Canarian society, such as the launch of a website and social networks with which care for affected families. Through the website you can access a server with a database of genetic mutations currently found in the Canary Islands and their links with different diseases, as well as hospital centers that can care for patients affected by the disease. heart disease and a database of the existing literature on the pathology Catecholamine Polymorphic Ventricular Tachycardia. 

 

Narváez has highlighted “the extraordinary work that is being carried out by the Canarian Umiaya Foundation with patients affected by this pathology along with the creation and organization of the new medical assistance committee. All of this will lead to the creation of online consultations through the website, that necessary communication channel that will be born with the support that we are providing to the foundation."

 

Fernando Wangüemert Pérez, new president of the Canarian Umiaya Foundation

The meeting between the San Bartolomé de Tirajana City Council and the Canarian Umiaya Foundation served to present the new president of the foundation, Fernando Wangüemert, appointed last October after the death of the previous president, Carmelo Pérez. 

 

Mayor Narváez welcomed Wangüemert and conveyed all her support so that she can continue providing care to those affected by genetic mutations that previously caused sudden death in many people. 

 

The Canarian Umiaya Foundation emerged in 2008 in San Bartolomé de Tirajana, in response to a health problem that, for centuries, had been causing sudden death in children and young people. The peculiarity was that all those affected were linked to the same family group originating in the municipality.

 

 

The new president of the Foundation, Fernando Wangüemert Pérez, is a specialist in Cardiology and medical director of the Cardiavant cardiology center, in addition to having received several research awards, such as the one from the Congress of the American College of Cardiology in Washington. 

 

A street for Carmelo Pérez Pérez

 

At the same meeting, the Canarian Umiaya Foundation highlighted the commendable work of the organization's founder, which is why it proposed to the mayor that a street in the El Tablero neighborhood be named after Carmelo Pérez Pérez.

 

Carmelo Pérez carried out the outstanding genealogical research that began in 1997, which determined a structure that includes some 3.750 individuals belonging to some 1.320 families, and some 5.450 genealogical lines distributed over 15 generations, since the second half of the XVII century.

 

Narváez highlighted that “the perseverance and research work of the theologian and teacher Carmelo Pérez made it possible to discover the gene causing sudden death in several families in the south of Gran Canaria and he deserves this recognition. For this reason, we will convey to the rest of all municipal groups the request to name a street in the municipality after them. His was a project dedicated to the lives of other people and without it there would not have been so much progress in genetic research in the Canary Islands.”